• Abbott House
  • You Can Be in a Hud Indy Ad Too
Community News
Dobbs Ferry News
Goings on in town

Lacrosse Fundraiser in Dobbs Ferry to Benefit Boy with Rare Disease

• Bookmarks: 72

May 14, 2021

By Rick Pezzullo—

A lacrosse game fundraiser to benefit an 11-year-old Dobbs Ferry boy who suffers from a rare and terminal disease will be held Friday afternoon at the Upper Field at Springhurst Elementary School in Dobbs Ferry.

The game between the Dobbs Ferry Eagles and the Irvington Bulldogs gets underway at 4:30 p.m., a day before MPS Awareness Day. Mucopolysaccharidoses (MPS) and Mucolipidosis (ML) are genetic lysosomal storage diseases caused by the body’s inability produce specific enzymes.

  • LOOK Cinemas Dobbs Ferry
  • LOOK Cinemas Dobbs Ferry
  • Advertise in The Hudson Independent - Westchester Rivertown's community news

It is the second such event organized by Dobbs Ferry High School senior and varsity lacrosse midfielder Harry Dann, Jr. in honor of Jacob Moon, a family friend, who suffers from Sanfilippo Syndrome, a rare, terminal disease.

Five years ago, Moon was diagnosed with the degenerative condition that affects 1 in 70,000 children in the United States each year. Moon is one of a handful of children in the tri-state area who suffers from his specific type of Sanfilippo Syndrome. He lacks an enzyme that breaks down cellular waste. This waste will eventually reach toxic levels destroying his brain over time which is why it is sometimes called “Childhood Alzheimer’s.” Major regression is a result and will reduce his life expectancy to his late teen years.

“Despite what the Moon family is going through, they never complain and are always so kind to everyone,” said Dann, Jr, 17, who is headed to Penn State University in the fall.

His mother, Barbara, added, “Harry really looks up to them and wanted to do the fundraiser again because he has always been so deeply moved by Jacob.”

Two years ago, the first lacrosse game in honor of Moon raised more than $1,000. Last year’s plans were cancelled due to the coronavirus pandemic.

Moon will be on the field at the start of the game with both teams’ captains. Bill and Christine Moon, who are also parents to 13-year-old Ella and eight-year-old Matthew, have had a difficult time managing Jacob’s daily routine this year on their own. That’s why this year’s fundraiser means so much to Christine.

“I’m always impressed and amazed by Harry and kids, in general, who are so motivated,” she said.

Dann, Jr knows that the pandemic may affect the game’s attendance but is encouraged by the Irvington team’s willingness to join his efforts as well as the goodwill of the Dobbs Ferry community. Dann, Jr. designed a special Celebrate Jacob t-shirt for both teams to wear. Those t-shirts will be available for purchase for $20 at the game with proceeds going to the Cure Sanfilippo Foundation (

To follow Moon’s journey, visit Facebook @celebratejacob.

Andrea Martone - real estate in Sleepy Hollow, Tarrytown and the Rivertowns

‘Mondaire, We Hardly Knew Ye’

By Barrett Seaman— After two years of political wrangling over the disposition of New York State’s political districts, a court-appointed...
Read More

Sleepy Hollow Boards Wrestle With Proposed Zoning Changes

By Barrett Seaman-- When a Sleepy Hollow resident voiced concern that the village’s plan to “repeal and replace” the zoning...
Read More

Local School Budgets Approved Easily

By Rick Pezzullo--- On Tuesday, May 17, voters in local school districts overwhelmingly approved budgets for the 2022-2023 calendar. In...
Read More

Flags Become a Flashpoint in Local Culture Wars

By Barrett Seaman-- Every now and again, tensions rise to the surface between the rivertowns’ uniformed police and firefighters on...
Read More

Pro-Choice Rally Draws 400 to Tarrytown’s Patriots Park

By Barrett Seaman— A line-up of Pro-Choice activists and their political allies stirred a crowd of several hundred sign-bearing residents...
Read More

Local Cars Being Stolen Right Out of Residential Driveways

By Barrett Seaman— Car thieves are back in the rivertowns. Actually, they never really went away, but reports of brazen...
Read More

Retired Teacher to Open Socially Conscious Coffee Shop in SH

By Rick Pezzullo--- For 35 years, Kim Kaczmarek worked as a special education teacher at Sleepy Hollow High School. Now...
Read More

Gullotta House Provides Aid to Westchester Families in Need

The Gullotta House was founded in 2015 for the charitable purpose of helping Westchester families in need, regardless of income. ...
Read More

Sleepy Hollow Student-Athletes Look to the Future

By Tom Pedulla-- To attend Sleepy Hollow’s recent college signing ceremony was to peer into the future. A bright future....
Read More

Mercy College Adjuncts Overwhelmingly Approve New Contract

By Jeff Wilson-- The fight for higher wages for adjunct instructors at Mercy College was finally resolved on Tuesday, May...
Read More
72 recommended
bookmark icon